Resources

Hemoglobinopathies: Current Practices for Screening, Confirmation and Follow-Up

American Academy of Family Physicians
Tips for preventing a sickle cell crisis

Sickle Cell Kids
Information about Sickle Cell disease and tips to stay healthy in a fun and interactive way

National Heart Lung and Blood Institute
Sickle Cell information tips for healthy living and resources

American Sickle Cell Anemia Association
Information and support groups.


Centers for Disease Control and Prevention

Hemoglobinopathies

Sickle Cell Disease

Blood Disorders

PHRESH Project

Thalassemia Data Collection & Blood Safety Monitoring

Thalassemia

VIDEOS

Improving Care for People with Sickle Cell Disease 
YouTube video about Sickle Cell

Module 1: Sickle Cell and Me
This video discusses the basics of sickle disease with interactive pre and post quizzes. The video provides a general definition of sickle cell disease; a sickled red blood cell; who is affected by sickle cell disease; and common signs and symptoms of sickle cell disease.

Module 2: Healthy Living and Sickle Cell Disease
This video discusses healthy living and sickle cell disease with interactive pre and post quizzes. It reviews the importance of nutrition and exercise for a teen with sickle cell disease; the effects of alcohol and tobacco use in a person with sickle cell disease; and the changes that occur during puberty in teens with sickle cell disease.

Module 3: Pain, Infection and Sickle Cell Disease
This video discusses pain and infection in a teen with sickle cell disease with interactive pre and post quizzes. It reviews possible pain triggers, the importance of preventative pain measures, and treatment for mild or moderate pain episodes for a teen with sickle cell disease. Additionally, the video discusses signs and symptoms of infection in a person with sickle cell disease and the importance of knowing the proper response to signs of infection.

Module 4: Other Complications of Sickle Cell Disease (excluding Pain and Infection discussed in Module 3)
This video discusses some additional complications that may occur in a teen with sickle cell disease. Also, the video has pre and post quizzes to allow for use as a teaching tool. The video provides a preliminary discussion of the following complications and symptoms that may occur in a teen with sickle cell disease:  stroke, avascular necrosis, acute chest syndrome, retinopathy, priapism, osteomyelitis, leg ulcers, gallstones, and some renal complication. Additionally, the video discusses some common treatments for these complications.

 Additional Resources

American Society of Hematology

Sickle Cell Foundation of Tennessee

Breaking The SSickle Cell Cycle Foundation, Inc.